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Beliefs, Communication, And How This Impacts Our Patients

I’m sure I’m not alone when I say I’ve seen some horrific things in my practice.

Now, when I say this, it’s not in the sense of major catastrophic injuries, or gory blood scenes, or something like that.

What I’m referring to is what I’ve seen and heard from patients as a result of what another well-meaning practitioner said to them. 

A patient comes in, sits down, and starts crying because another therapist told them they will never get better.

Another person who has been dealing with chronic pain for several years comes in and equates the pain they’re feeling in their back to a “rib being out”, or “their S.I. Joint is out again”.

And in the more extreme ranges someone giving up a career they love, in exchange for a job they hate because two people told them they would never be able to do their job again because of the surgery they just went through. In fact, told them if they continued doing the job they loved (and were very successful at), the surgery they just had would pale in comparison to the one they would need.

While I know none of these practitioners would intentionally have someone change their job, believe they won’t get better, or would constantly relate pain many years later to a simple biomechanical diagnosis, the reality is, their words changed people’s lives. 

And not for the better!

So, why then does this happen? Why are these enduring effects of words having such a dramatic impact on patients? And, more importantly, how do we stop this?

When Well-Meaning Beliefs Go Wrong

When we say “well-meaning” practitioners I do believe it’s just that. I doubt there are many out there legitimately trying to say harmful things to their patients (although I do believe there are some who use less than scrupulous language as part of the rebooking process).

So, when we have these well-meaning professionals saying things to patients, part of why they are saying the things they are is because they truly believe it (even if modern research refutes it). Part of the issue is when these belief systems are passed on to our patients it can have a lasting effect in a negative way. 

Unfortunately, many of these belief systems can come from continuing education courses that haven’t been updated in years and are still preaching these outdated belief systems.

A great systematic review (1) looked at several medical and paramedical professions to look at how their belief systems, (including biomedical and biopsychosocial treatment, fear-avoidance beliefs, and attitudes) affected patient behaviours.

There were several things that stood out to me reading through this(1):

  1. High levels of fear-avoidance in practitioners are related to the same fear-avoidance in patients.
  2. Practitioner beliefs are associated with the education they give patients.
  3. Practitioners with a more biomechanical base are more likely to advise acute pain patients to limit work and physical activity.
  4. Those with high fear-avoidance beliefs are more likely to recommend bed rest (which we know is not good for low back pain) and are also more likely to recommend this if seen in a media campaign.

Now I realize it probably sounds like we’re bashing anything related to biomechanical explanations here but honestly we’re not.

As we have said so many times over the years, biomechanics are still important, it’s just one piece of the puzzle. What I’m taking from this review is that if we’re strictly relying on biomechanical explanations we’re more likely to also cling to fear-avoidance beliefs as well, which isn’t doing our patients any good.

Part of the problem here is that if a practitioner has these beliefs, they get passed on to the patients we see. One of the major issues with this (as pointed out in the review)(1) is these beliefs result in persistent disability but not necessarily a change in pain.

So, if these beliefs are held, the patient’s pain won’t always change, but there is an increase in disability. Imagine your patients coming in for care and strictly because of a belief system, not only does their pain not get any better, but they become more limited in the things they can do. 

In light of all this information, I look back and think about early in my career and how I was saying very similar things to my patients. There comes a time when we have to sit back and ask ourselves whether the information we are conveying is correct, but also, is it in their best interest?

This review showed that even though some health care professionals believed in the biopsychosocial framework (it was originally introduced over 40 years ago), they were still operating from a biomedical orientation. In the case of doctors, they understood how important psychosocial factors can be yet, they lack the time to properly integrate this into practice.

So, while I look back on my career and cringe at some of the things I used to say, I look at this information and see how beneficial this is for us as Massage Therapists. If we embrace new research and change our beliefs, we not only have the time to spend with our patients, we have the opportunity to create lasting change for what they are going through. 

Words Matter!

So, now that we understand the influence of both the patient and therapist beliefs, the question remains, where did these beliefs come from?

Quite often these beliefs are because of lived experience, observing others in pain, or things that have been told to them throughout their life. A big influence was just not having a framework or a reference of what they should do when experiencing pain.(2)

All too often we see patients going to Dr. Google for advice, however, while this is usually looked at cautiously, people do place higher importance on the advice of friends and family.(2) While people would often seek out care from a health care professional, they would sometimes reject the advice given as they questioned their competence, and would even keep their own beliefs if it conflicted with the advice of a professional.

Now, this isn’t necessarily a bad thing because there’s nothing wrong with a patient using their own intuition to choose what course of action is best for them. It’s important for patients to feel confident in the information being presented to them, in fact, it’s even possible for their symptoms to be influenced by their interpretation of the education they are given.(2)

However, even if we believe we are giving them a very simple explanation of what is happening, there can be an enduring impact. I can now hear my mother’s voice resonating from my childhood and what she would say every time my brother and I would fight: “it’s not what you say, it’s how you say it!”

This paper has several examples of the lasting effect of what we say, which I think are important to highlight.

When a doctor gave a simple diagnosis of a sprain in an attempt to decrease the seriousness of the injury, the patient understood this to mean they had moved in such a way they had strained the muscle and they would make it worse by continuing to move the same way.

In the case of a person getting help from an orthopedic specialist, the result was well…horrific:

[The orthopedic specialist] looked at my back MRIs for a little while and turned around with a grin on his face and said, “You’re a builder, aren’t you?” and I said, “Yes,” and he said, “You’re [expletive], ha ha ha,” and went back to his computer again…. So, you know, I think that was his rather odd specialist way of breaking the news to me that I wouldn’t be working as a builder for very long…. Every time I felt a little bit wrong [after that], I started to sort of add it up in my head. And then my usual way of thinking, “Oh, that’s fine, that’s nothing, that’ll go away, that’s not major enough to stop me working, I’ll carry on [changed]”…him saying that was definitely the point, because I probably would have just carried on(2)

This person actually ended up changing careers as a result of what was said to them! Sadly as I mentioned, I’ve seen the same result in practice as well.

Another example that stood out to me in the same paper was equally as life-altering:

Basically all I’ve kind of been told to do by physios is to work on my core…I’ve been tested by various different physios, and Pilates, and I’m apparently ridiculously weak…. I had an abortion because I didn’t think I could have a baby. I didn’t think I could handle it…carrying it, and having extra weight on my stomach(2)

Can you imagine what this woman went through dealing with this?

Again, I’m sure these were well-meaning practitioners but when our communication is focused more on the things we can’t do as opposed to the things we should do can have compounding long-term effects. If we shift this line of thinking and encourage movement, provide reassurance, and show people how they are safe to remain active it can (and most likely will) have the reverse effect of the quoted stories we shared.

While many practitioners have a belief in the biopsychosocial model, many are still using biomechanical explanations of tissue damage, etc in an attempt to help their patients. As we have seen this can be detrimental to the patients well being. So it’s important to have a discussion around how to change these beliefs in practitioners. Many of us went through college and learned these things (I know I learned many of these explanations in school) and unfortunately, there are many continuing education courses still offering these kinds of explanations. This becomes our responsibility as a profession to change this, and really it starts with each one of us. It doesn’t even mean you have to spend thousands on new courses, it can mean just reading blogs like this, or a new research paper a week (it doesn’t take that long I promise), because we must change our beliefs in order to have a better impact on the people we are seeing in practice. When our beliefs (and our messaging) start to change we can slowly change our patient’s beliefs for better outcomes. Then, hopefully…hopefully, patients feel safe to return to their careers or have babies, or just return to an activity they love.

 

References

  1. Darlow B, Fullen BM, Dean S, Hurley DA, Baxter GD, Dowell A. The association between health care professional attitudes and beliefs and the attitudes and beliefs, clinical management, and outcomes of patients with low back pain: a systematic review. European Journal of Pain. 2012 Jan;16(1):3-1
  2. Darlow B, Dowell A, Baxter GD, Mathieson F, Perry M, Dean S. The enduring impact of what clinicians say to people with low back pain. The Annals of Family Medicine. 2013 Nov 1;11(6):527-3

Articles of the Week – January 10, 2020

As therapists, we commonly treat symptoms such as headaches and dizziness. However, it can be difficult to differentiate dizziness onset by cervicogenic factors from those from vestibular and other systemic causes. This article gives us a brief overview that can assist with our reasoning.

A Brief Overview of Cervical Dizziness – Erson Religioso

 

We’ve talked about different mental strategies to help decrease the sensation and perception of pain. This article speaks about one experiment that compares three different methods to find out which one is the best.

To Keep Pain in Check, Scientists Say ‘Count Down’ – Good News Network

 

Aggressive goal setting is rampant every January, but it’s a trend that can be detrimental to a lot of our clients who deal with chronic health challenges. Here’s one opinion piece from an individual with chronic illness to help us rethink our encouragement of resolution-making.

I Have a Chronic Illness. Here’s Why I Hate New Year’s Resolutions – Hattie Gladwell

 

Do you prescribe exercise as part of your health practice? If so, then it’s important to remember quality over quantity and that just because an exercise is “harder”, it doesn’t necessarily equate to more benefit.

Working Hard VS. Always Making Exercise Harder – Tony Gentilcore

 

Finally, with the New Year, we all tend to see a wave of clients who are looking to make positive lifestyle changes and will be relying on effective coaching from us. Whether you’re a massage therapist, personal trainer, or nutrition coach, the right kind of language when helping guide these changes is crucial.

Effective coach talk: What to say to clients and why it matters. – John Berardi

Have We Ballsed Up The Biopsychosocial Model?

One of the most widely discussed topics in healthcare and especially in pain circles of late is the Bio Psycho Social model conceived by George Engel.  The BioPsychoSocial (BPS) model was developed in reaction to the dominant biomedical viewpoint that involves reducing medicine to specific diseases or pathologies that can be identified and treated and this model forms the backbone of most western healthcare systems.

Engel felt the biomedical model:

“does not include the patient and his attributes as a person, a human being”

But the question is, have we misinterpreted the BioPsychoSocial model?

Are we simply applying it in the same way as the biomedical model it was trying to replace?

It’s People Not Just Pathology!

We know that people’s experiences of pain and pathology differ. The same painful problem may manifest as huge issue for one person disabling them from work and reducing dramatically their quality of life, whilst another person may remain relatively unaffected. This has to be taken into account both in treating the problem but also how the person is TREATED by their healthcare professional, their family and social network and the wider healthcare system.

We can see below from Engel’s view that it is a bi-directional model that involves the layers in which we exist rather than discreet treatment targets as we now see.

Download 4We could perhaps determine this interaction between layers as the wider impact OF the problem rather than just as impacting ON the problem. Rather than seeing the BPS as a direct treatment model where we dissect the three domains to find new pain ‘drivers’ to treat, the BPS perspective should really be seen as a CLINICAL philosophy and guide that can be used for improved patient care.Here is another interpretation from a recent paper ‘How do physiotherapists solicit and explore patients’ concerns in back pain consultations’

“underpinning the bps model is patient-centred care (pcc) which involves incorporating the patient’s perspective as part of the therapeutic process”

One of the issues that are often encountered in healthcare however is that clinicians AND patients want solutions and treatments rather than philosophies and the conversion into a treatment model conforms to the biomedical perspective that dominates healthcare.

Maybe the BPS asks us, as clinicians to better understand our patients and their subjective experience? And it may be better defined as a model of care rather than a model of treatment. Now, this does not mean we cannot involve a BPS thought process IN specific treatment but remember that this is just not really the major focus of the model, certainly as I understand it anyway.

So it is really treating people and their overall existence, not just treating their painful problems. These differing aspects cannot just be separated and simply targeted without an understanding of the person and the context they exist in, doing that for me is the biopsychosocial model in biomedical clothing.

Other commentators such as Leventhal have looked at concepts such as the disease and the illness *HERE*. The disease being the specific issue and the illness being the wider issues surrounding the problem, in my interpretation, this is similar in concept to the BPS. How is this PERSON individually affected by the problem that may even BECOME the problem itself?

Just Treat The Pain?

I can already hear some readers shouting, “Just treat the pain – then you will not have any more problems”

Well, that is the biomedical view in a nutshell!

Firstly we have been attempting to do this for ages, hence why there has been a call for a different model. Often treatments for pain are not successful and people need help in other ways and we treat pathology but pain persists. Perhaps the interaction with healthcare even makes the problem worse!

Can we treat the person and pain? Yes, I believe so. We should not forget this, just realize our limitations at doing so and also avoid pain being the only focus.

The question is do we often attempt to treat the person AND the pain? I don’t think this happens as much as we would care to admit.  Maybe treating people rather than their pain can lead to reductions in pain? Maybe we cannot have an impact on people’s pain but affect suffering, disability, and quality of life? We may not be able to do this in a pain-focused model and why we end up with repetitive surgeries and the opioid epidemic?

People can still have pain and live a positive life; the BPS model is really well placed to help them do so and does life simply return to normal even after pain has reduced for all? I would hazard a guess that for many people their lives are fundamentally changed even AFTER persistent pain has decreased.

BPS Model Of Pain

A pain-oriented BPS model has emerged more recently and two examples of this can be found *here* and *here*. These interpretations should NOT be confused with Engel’s model I feel, and perhaps misses the essence of what he was reaching for. Maybe an issue with the BPS model is its breadth and how far-ranging it is? It is quite easy to place our interpretation anywhere within it.

The pain focused model looks at how Biological Psychological and Social factors can influence pain.

This diagram is a great example with the arrows pointing solely inwards.

Screen Shot 2019 08 21 At 07.34.26(Figure Fillingim 2017)
The problem here is that it is a return to a biomedical view in which the person is less of a focus and instead the disease (in this case pain) has returned to become the primary focus. Instead of being a comprehensive BI-DIRECTIONAL clinical philosophy, it has in many cases become a unidirectional treatment model.  We also have much more evidence for BPS aspects being associated with pain than we do actual data to support treatment for pain using these BPS aspects.Seeing PsychoSocial factors simply as pain influencing factors is missing the wood for the tree’s I feel. This would be a multifactorial pain treatment model, not the BPS model set out by Engel.This has drawn critique, and rightly so, of the BPS model and its interpretations. A recent paper from Stilwell and Harman can be found here called “An enactive approach – Beyond the BPS model”(Thanks to the authors for the full-text link!). This critique, I feel and highlighted by the authors, is not really of the Engel’s model but instead, the pain focused interpretation that has evolved. We may not need to move beyond the BPS model, more just apply it in its intended way. Let’s try to do that before we think beyond it.Stilwell and Harman go on to say

“Pain is…..a process that emerges or unfolds through a whole person who is inseparable from the world”

but we should also consider the BPS perspective already to consider the whole world and our existence within it and not just its effect on pain!

The very essence of the BPS model was NOT to delve further and further into the microscopic components of biology but instead to also zoom out to encompass the other factors that may be at play in both pain and quality of life.  I have written about this *HERE*. But if we consider most of the discussion, theories, and dominant messages around pain they focus on the reductionist view that Engel was trying to get away from.

As an example please insert any painful problem here ‘XXXXX’. Even the most uni-factorial biological one you can think of… let’s say a fracture.

How does their perception and knowledge, sense-making, around the issue affect them and their behaviors?

How does the injury affect their work and family life?
What are their perceived implications for the future?
How confident are they to return to sport or activity?

How motivated are they to engage in rehab or treatment?

This is considering the PERSON and heir engagement and embodiment in the world not just breaking down pain ‘drivers’ as the trend seems to have become and accusations of people forgetting the bio (eye roll).

Straight Lines & Trichotimies

Some of the criticisms of the BPS pain model focus on the division into three distinct components biological, psychological, and social as well as a perceived linear causality between the associated factors and pain.

My view of Engel’s work is that he objected to a linear causality model. Emergent properties such as pain NEVER have simple linear relationships with causes (whatever they are?). Again this is a misinterpretation and application specifically to pain of the original work. Linear causality is a criticism of previous Cartesian pain models but appears to be alive and well in the BPS.

The term ‘non-linear’ means that small things can give large effects but also large effects in one area may also give rise to no effects in the targeted area.  There are so many interactions occurring that can affect each other that the same treatment may give rise to DIFFERENT positive or NEGATIVE outcomes dependent on the current state of the organism.

We seem to be happier for this to be the case now biomechanically, but less so biopsychosocially. If we are being honest then we have many more associations WITH pain from what is termed BPS factors than actual data from using these factors to treat pain.

The trend of splitting pain into separates categories of Biological, psychological, and social to diagnose and treat is another critique that Stilwell and Hartman highlight in their paper and neatly term a trichotomy. I feel Engel’s point was not that they exist distinctly as pathologies to treat but in their own right but to consider these things within the wider appreciation of the patient’s experience.

Conclusion

  • We should really see the BPS model as a CLINICAL PHILOSOPHY and way of incorporating the patient into healthcare.
  • It is intended to understand patients, their lives, and contexts.
  • The biopsychosocial model COULD be used as a pain treatment model, but this is probably not how it was intended. This may be better termed a multi-dimensional pain treatment model.
  • There is not really much data on outcomes from treatment using a BPS pain model.
  • BPS factors are not simply linear treatment targets.
  • We may need to better apply the BPS model rather than move beyond it.

Articles of the Week – January 3, 2021

A story that was making the news last week was the correlation between grip strength and overall health. While it’s important to remind ourselves of the difference between correlation and causation, perhaps we can use this relationship to help and gauge a client’s health during assessments.

Getting a ‘grip’ on better health – Fliders University

 

The Achilles tendon is the poster-child of tendon injuries. Here, we talk about the predisposing mechanical factors to Achilles pain and preventative exercises to keep them healthy.

Measures to Strengthen and Prevent Achilles Injuries – Tony Gentilcore

 

Professionals in our field of work are often overachievers who can’t wait to brush up on the next bit of research, read a book about business, and respond to every opportunity and request. However, as awesome of a practitioner as that makes you, it’s important to mind your own self-care.

Self-care for the Overachiever – Yusra Iftikhar

 

Here’s one to challenge your brain. We often talk about the importance of variation of movement for optimal health and recovery. However, this strength and conditioning coach has some good rationale on why and when you might want to turn back to specificity and repetition with athletes.

Variation Without Change – Eric Cressey

 

Two groups of people undergoing surgery – one listens to a blank tape while under anesthetic while the other listens to a tape of positive, therapeutic messages. Read on to find out which group required less pain medication upon waking.

Effect of therapeutic suggestions during general anaesthesia on postoperative pain and opioid use: multicentre randomised controlled trial – Nowak et al.

Starting Over

 

*While Laura Wrote this back in April, its applicable today as we look to the new year, especially as we see a second wave hitting several places, with new shutdowns in place. 

 

A couple of months ago, any one of us could have started a sentence with “When this is over,” and chances are, no one except your family or close friends might have known what personal problem you were referring to. Now, everyone knows what it refers to: COVID-19. For many of us, it’s personal on some level. We’ve had a friend or family member or acquaintance who was sick with it, or died from it, or maybe you’ve personally been sick with it.

At this point, no one knows when “it” will be over…” it” meaning the effects on society. There are millions of Americans out of work due to shutdowns of “non-essential” businesses. There are shortages in grocery stores…every day on my social media, I am still seeing people who can’t find a roll of toilet paper. This is Easter Sunday, and millions of Americans who would otherwise be at church are at home watching a service on television or streaming service on the Internet.  Some churches are holding parking lot services where the congregants remain in their cars.

I’ve had a lot of private messages from massage therapists asking my opinion on when we’ll be back to work. The short answer is, I don’t know. Nobody knows. I live in NC, and the governor ordered things shut down until April 30. I personally believe it will be extended beyond that, and even if it isn’t, I will probably wait several weeks beyond the date that it is lifted to go back to work. I’m the suspicious type, as well as one who errs on the side of caution, and I fear a “back to work” decision from the government that is based on economics instead of actual safety.

We tend to think in terms of ourselves and our own occupation and our own lives. There may be no intention of being selfish or self-centered, but that’s the way things are. In reality, there are going to be a lot of businesses, of every type, that do not survive this shutdown. Your favorite restaurant, coffeehouse, or bar may be forced out of business. Your neighborhood florist, art gallery, or gym that is privately owned and not part of a big chain may be gone. While some landlords are giving rent relief, others are not. Some business owners simply cannot pay rent for several months when they don’t have money flowing into the business to cover that cost. In fairness, some landlords count on their rent money to make ends meet themselves.

For many massage therapists (and others), once the shutdown is over, this will be like starting all over at square one. While many may have faithful clients that can’t wait to come back, we have to consider that many of our self-employed clients or those who work in businesses deemed non-essential, may be in the same boat we’re in: unemployment checks are not coming in yet, but the bills keep piling up.  A lot of people may have to choose between getting a massage or trying to catch up on their bills.

For those who are self-employed, and ICs (many of whom are misclassified, but that’s another story altogether), this situation may cause you to rethink your employment circumstances. Those who are employees have had a much easier time signing up for unemployment. While the federal government has announced the intention to extend unemployment payments to self-employed and ICs, most state unemployment websites have been waiting on instructions from the feds to get that started. NC’s website states that it is expected to be in place by April 25 for self-employed and ICs to file. If you don’t have a cash cushion, that’s a big financial strain for those who are waiting.

Anytime you choose to be self-employed, you’re taking personal risks. If you’re using independent contractors in your business, they (and you, if you have them misclassified) are also taking a personal risk. Ask yourself if you could live for 6 months without money coming in. If the answer is no, rethink your decision about your work circumstances. Go over your budget and see where you can cut expenses in order to save money. Maybe that means doing without stopping for coffee on the way to work every morning or doing without eating out. Or giving up your addiction to new shoes, or carefully tracking the mindless spending most of us do. I recently saw a meme pointing out that spending 27.35 per day adds up to $10,000 in one year. Using an app like EveryDollar can help you see where your money is actually going.

Many people are just one paycheck away from total disaster. I’ve been there myself in years gone by. This isn’t meant to be negative; it’s meant to be a reality check. We don’t know how long this is going to last, but it’s already evident that many people are in big trouble.  It’s a good idea, when the world returns to some semblance of normalcy, to treat this as an opportunity to start over with a plan to be better prepared, so the next emergency doesn’t knock you flat.

It’s also a fact that at the end of our lives, none of us are going to say “I wish I had worked more.” We’ll be wishing we had taken more time to stop and smell the roses, spent more time appreciating our families, had more quality time with our spouse, or learned to play the flute or paint or whatever you think you never have time for. If you have that time now, just do it. While you’re adding up your problems, don’t forget to add up your blessings.

In closing, I express my gratitude to all the medical personnel who are on the front lines, and the essential workers who are enabling us to still go to the grocery store, the gas station, and wherever else we NEED to go. I’ve found out in the past couple of months that I don’t need to go near as many places as I thought I did. Bless all who are sick and suffering and all those who have lost loved ones.  Bless you, all, and may you remain safe and well.

Articles of the Week – December 20, 2020

A study this past year suggests that heightened pain sensitivity may be a genetic mutation in those of us who possess neanderthal DNA. We can’t exactly do anything about a client’s genes, but that’s an interesting tidbit for you to know!

Neanderthal gene linked to increased pain sensitivity – Hugo Zeberg

 

“Habits are a safe harbour in stressful times.” Great sage advice that is referenced in this article about creating and maintaining healthy exercise habits in a time where stress and anxiety are running high.

Exercise Habits: Build Them When It’s Good – Justin Kompf

 

A study that examines chronic pain trends within a large occupational workforce from which you’ll likely recognize all of the concepts that predispose certain subsets of workers to pain. This gives us a great overview of how to explain employee health and manage prevention when, for instance, helping to create health initiatives within companies.

Cross-sectional study of prevalence, characterization and impact of chronic pain disorders in workers – N. Kerckhove et al.

 

A fascinating article regarding the affect of someone’s language can affect pain, particularly in bilinguals.

How language, cultural identity can affect pain – University of Miami

 

We all learned the basic physiology of muscle hypertrophy in school. However, it’s easy to lose track of these concepts in practice and, before you know it, all clients are doing ten reps of all exercises to no specific tempo. The Barbell Physio provides a great review to help us fine-tune our rehab methods.

The Mechanism of Muscle Hypertrophy – The Barbell Physio